Rare diseases, difficult decisions–Here’s a peek at my journalistic investigation exploring the medical, social, and economic issues connected to the treatment of rare diseases in Canada. Alberto Mendoza Galina and I produced dozens of short films, data journalism, historical time lines and other materials explaining rare diseases, the forces that make their treatment so expensive, and the difficult trade-offs this imposes on Canada’s taxpayer-funded health care system. The project will be published at rare-diseases.ca as a web-based documentary that users can explore in an interactive, self-directed manner.
The Vancouver Sun: Maternal drinking casts lifelong shadow–Hundreds of thousands of Canadians live with a wide range of physical and psychological disabilities caused by prenatal alcohol exposure, according to Health Canada estimates. They’re born with irreversible damage to brain and body. The injuries slow their childhood development, hold them back in school, create a chaotic adolescence and leave them unable to lead independent adult lives.